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VIDEO: 'Butterfly disease' sufferer Claudia speaks with idol Johnny Sexton about pain and public attention

Claudia Scanlon (14) from Terenure in Dublin has a severe form of the 'butterfly skin' disease EB (epidermolysis bullosa), which leaves 80pc of her body covered in wounds.

This incredibly painful genetic condition causes the skin layers and internal body linings to blister and wound at the slightest touch.

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