Saturday 21 September 2019

Couple auctioning signed Dubs shirt to raise funds for baby battling rare genetic disorder

Kitted out: Sionnach Moran (10 months) with his parents Lynn and Kris. Photo: Frank McGrath
Kitted out: Sionnach Moran (10 months) with his parents Lynn and Kris. Photo: Frank McGrath

Gabija Gataveckaite

The parents of a seriously ill baby battling a rare genetic disorder are auctioning a signed Dublin jersey to help cover their son's medical costs.

Ten-month-old Sionnach Moran has been diagnosed with Revesz syndrome and attends hospital five days a week with his parents.

The disorder causes retinopathy and bone marrow failure.

His parents Lynn Moran and Kris Humphreys-Taylor, from Cabra in Dublin, are raffling the signed Dublin jersey as well as an Everton shirt to help raise cash to cover his medical bills.

The Everton jersey was provided by Mr Humphreys-Taylor's mother, who volunteers with the Merseyside football club.

The special Dubs jersey was donated by someone who will have more than a passing interest in tomorrow's All-Ireland football final replay against Kerry at Croke Park.

"One of the Dublin players, Jack McCaffrey, is Sionnach's doctor in Temple Street and Sionnach sees him twice a week," said Ms Moran. "Sionnach loves him and he's always very nice to Sionnach and really takes his time with him."

Ms Moran said she reached out to the Dublin star and was blown away by his response.

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"We told Jack we were going to start fundraising and he said 'Let me see what I can do for you' and came back with the signed jersey. We couldn't believe it," she said.

Mr Humphreys-Taylor said the family had been moved by the generosity of people who are trying to help Sionnach.

"People have been so incredibly generous helping us raise funds and we're so grateful," he said. "It's very heartwarming how people come together and try and help one another."

Sionnach was originally diagnosed with the disorder after he lost his sight. He is being lined up for a bone marrow transplant which would see him put in isolation in hospital for two to three months.

This would be followed by six months of two all-day visits per week.

"When he would be in isolation in hospital, we wouldn't be able to leave him on his own and so one of us will have to be with the baby at all times, eight hours or 12 hours per day," Ms Moran said.

While she admitted that the couple haven't been able to fully process the illness, she said the assistance they have received has been a big help.

The couple have raised almost €40,000, nearly a quarter of the way to their €200,000 goal.

The raffle to win the signed Dublin jersey is and Sionnach's gofundme page can be accessed here

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