The very essence of resilience and determination, campaigner Vera Twomey had to go to unimaginable lengths in order to access life-saving treatment for her beloved daughter Ava. Taking on the whole system over the course of a two and a half year campaign to secure medicinal cannabis for Ava, Vera is set to officially launch her book of that title - 'For Ava' - at the Book Centre in Wexford this Saturday afternoon.
After Ava was diagnosed with a rare form of epilepsy, seizures became commonplace, pushing her into cardiac arrest and even into an eight day coma. At one point, Vera and her husband Paul were told that their daughter was not expected to live past three years-old.
In the book, Vera explains how she refused to give up on her little girl and battled for the state to change their position on medicinal cannabis.
After a huge amount of campaigning, which included two 260km walks from Cork to Dáil Eireann, Vera managed to obtain a licence for medicinal cannabis for Ava and she has come along in leaps and bounds since. Vera has paved the way for so many who will benefit from her heroic struggle. Her refusal to give in has meant that her daughter is now seizure free and attending school each day, and engaging in many other activities that any nine-year old child would regard as normal.
Vera is looking forward to visiting Wexford on Saturday to officially launch her self-penned book that tells her inspiring story. It will take place at 12.30 p.m. at The Book Centre and all are invited to come along and meet this inspiring woman face to face.