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Looking stripy as Killorglin family join Bumbleance fundraiser

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Marley Mae Mitten from Killorglin and her parents Zsuzsanna and Stephen and brothers Abel and Ben Mitten are callling on the public to support Stripy Jumper day to raise funds for Bumbleance.

Marley Mae Mitten from Killorglin and her parents Zsuzsanna and Stephen and brothers Abel and Ben Mitten are callling on the public to support Stripy Jumper day to raise funds for Bumbleance.

Marley Mae Mitten from Killorglin and her parents Zsuzsanna and Stephen and brothers Abel and Ben Mitten are callling on the public to support Stripy Jumper day to raise funds for Bumbleance.

kerryman

Two-year Marley Mae Mitten from Killorglin – who is the only child in Ireland with the rare EARS2 mitochondrial disorder – has put on her stripy jumper to take part in a fundraiser for Bumbleance.

The family from Killorglin are urging everyone to get involved to support the children’s ambulance service which has helped their daughter so much in the past two years. 

Marley Mae is the daughter of ZSuzsanna and Stephen from Killorglin. She was diagnosed with  EARS2 over a year ago following  a long and difficult road. She is one of only 18 cases in the world.

Marley Mae  is unable to walk or talk or sit up unaided and has severe muscle and movement problems as well as liver and heart problems along with swallowing and gastro-intestinal issues.

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She had to regularly travel for hospital appointments and Bumbleance has played a huge role in  helping the family attend these appointments. 

Bumbleance was set up in 2013 with the vision to provide transportation services for children affected by serious and life limiting conditions in a fun and safe environment. It is the official Children’s National Ambulance Service of Ireland and provides safe and comfortable transportation for Ireland’s youngest patients as they travel between their homes and hospitals, hospices, treatment centre, and respite centres nationwide. The service is totally free for service users.

With demand for the service ever increasing Bumbleance have launched a fundraising drive with a new event on Friday, November 26 with the public asking to support their Stripy Jumper Day. 

Bumbleance want you to #GetYourStripeOn and help children like Marley  Mae. They are asking schools, offices, and communities to join together and take part in their Stripy Jumper Day to raise funds for those who need it most, 

Head of Communications and Fundraising, Heather Rainey, said the idea is simple. 

“We want to spread awareness of our service and raise these vital funds in an easy and fun way. In the office, turn a casual Friday into a Stripy Jumper Day for Bumbleance instead. Why not #GetYourStripeOn at your school as an alternative for non-uniform day?

There will be many competitions taking place on their social media accounts during the build up to Stripy Jumper Day. Registration for the event is now open on  www.bumbleance.com. €400 will cover the cost of an Angel Trip, which means that you will be helping Bumbleance bring a terminally ill child home one last time before they pass.


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