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Little Alicia who could actually die if she drinks milk

MILK could put this little Alicia Butler's life in danger.

Alicia (18 months) was born with a potentially fatal and rare disorder called galactosaemia.

However, thanks to staff at Dublin hospitals, Alicia's condition is being managed by a special diet.

This weekend, her proud father Gavin Butler will be taking to the stage to raise funds for the hospital that saved the toddler's life.

The beautiful little girl, who is the daughter of Gavin (37) and Emer Butler (36) and little sister to brother Mark (4), was diagnosed with a rare inherited disorder called classical galactosaemia just days after her birth at the Coombe Hospital.

"You hear of dairy intolerance, but this is a lot more acute and severe," dad Gavin told the Herald.

If Alicia ingests any dairy products, the results could be fatal.

"Her liver will break down and her blood becomes toxic. The toxins then travel to her brain and can cause severe disability and even death."

It was thanks to her care under the staff at the Coombe, and Dublin's two other children's hospitals, that Alicia survived. And it's with this in mind that Gavin along with Abbaesque, The Classic Beatles and an Elvis tribute act, will take to the stage at the Olympia this Sunday to raise funds for life-saving equipment which will be donated to the Coombe.

Six days after her birth, Alicia became listless and was taken from her home in Chapelizod to the Coombe.

"Within an hour, Alicia was having seizures and was immediately admitted to ICU. On one of her days there, she lost her breathing and had to be resuscitated," Gavin recalled.

Doctors immediately considered classical galactosaemia and placed Alicia on a special feeding formula.

She remained in ICU for two more weeks, before returning to Special Care. During her fraught two weeks in a critical condition, nobody knew if Alicia would recover without severe disabilities.

Her condition continues to be monitored as there are other long-term unpredictable effects with galactosaemia.

Meanwhile, Gavin and Emer are looking ahead to a bright future with their children -- and are eager to give something back to the system that saved their daughter.

They hope Sunday's event will raise funds for an infant ventilator, which costs €51,000. This equipment was used when their daughter was at her most critical.

Tickets for the fundraising concert on March 20 -- featuring Abbaesque, The Classic Beatles and an Elvis tribute act -- are priced at just €25 and are on sale from the Olympia box office or on Ticketmaster.ie.