A voluntary organisation has secured funds to enable parents of children with Duchenne Muscular Dystrophy (DMD) to attend an international conference on the disease which will take place last this month.
DMD is the most common genetic killer of children, affecting 1 in 3,500 to 1 in 6,000 boys, and 1 in 50 million girls. Around 120 children in Ireland are affected by the muscle wasting disease. Currently there is no treatment and no cure.
The conference which takes place in Croke Park on June 24 is organised by Join Our Boys Trust. It has received sponsorship to reimburse any parents who have registered for the conference to be addressed by world experts.
The conference covers the latest research for cures into the disease, along with identifying what Irish services need to develop to ensure Irish children have as good outcomes as children in other developed countries. For information on registration, parents and other delegates should link to www.joinourboys.org and if they identify themselves as parents or immediate family members on their registration form, the fee of €50 will be reimbursed.
Health & Living