Friday 24 November 2017

'The care they give is a God-send for our family'

LITTLE Lily Kelly's parents are facing a constant battle.

Every day they wake up, and have to care for their disabled daughter who was born with microcephaly - a neurological condition.

The toddler relies on her parents to be fed, as she cannot walk or talk and is prone to seizures.

Her dedicated parents said their darling daughter requires 24 hour care, seven days per week. However, the Dublin family are in receipt of 32 hours nursing assistance from the 'Jack and Jill Foundation' each month, something they have described as a "God-send".

"She's stable. She is doing a lot better than what we were told at the start," her father Stephen said.

The two-year-old's mother Louise said that she uses the time the nurses give her to carry out simple household tasks like the grocery shopping. "It's amazing, you can walk out your front door, and take a deep breath and know your child is looked after," she added.

The couple said that every time their nurse calls them, they fear it is bad news and that their hours may be cut.

Stephen said it would be "a total disaster" if families weren't to receive this help, and encouraged people to donate if they can.

"There are a lot of families like us who are probably in worse situations. It really is a god-send."

Irish Independent

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