Stars rise to occasion for cystic fibrosis week
There is still no cystic fibrosis specialist centres north of a line that runs from Dublin over to Galway, patient campaigners warned.
It means that people with the disease in these regions are relying on centres used by patients with other conditions.
Philip Watt, chief executive of Cystic Fibrosis Ireland said there is an urgent need to upgrade key facilities for patients with the disease, including the in-patient rooms at Beaumont Hospital in Dublin.
There is an ongoing delay in the development of the new national children's hospital, where all children with cystic fibrosis will be treated.
Mr Watt said: "Since the start of the economic crisis in Ireland, we have seen progress in some areas of cystic fibrosis care but also significant cutbacks in services."
He was launching the '65 Roses Week' which starts on April 20, with former Ireland rugby star Paul Wallace and RTÉ 'Fair City' star Jenny Dixon.
People are asked to take a 65 Roses Challenge, as featured on www.cfireland.ie, or to make a €2 donation now by texting "65ROSES" to 50300.