Megan Halvey-Ryan (13) who suffers from scoliosis - an abnormal curvature of the spine - said she now finds it almost impossible to attend school.
The Limerick girl described how she can feel sick with the pain. She told last night of how she is just "sick of this stupid thing". And Megan said she feels her condition is affecting the whole family.
"It makes me really sad because I don't want to see her upset and I feel like it's somehow my fault. I just want the surgery, it's not fair," her mother said.
"It's not fair for any child to have to go through this when it can be rectified with surgery, she doesn't have to be like this.
"All she needs is her surgery and this will go away and she can start her life again, and she's not having her surgery, she doesn't have a date.
"We're still in limbo."
Two years ago, Megan only had a 20-degree curve but now it's an s-shape.
Pat Kiely, an orthopaedic surgeon who operates on children with scoliosis, said he would like to see more use of the theatres at Our Lady's Hospital in Crumlin.
Children should be operated on between three to six months, he said.
However, the delays mean their condition can deteriorate and the surgery is more complex.
Currently he is doing around one to two of these operations a week.
The waiting time for surgery faced by children is 15 to 18 months.
We are still in the midst of another winter trolley crisis in our hospitals - but behind the scenes and the frontline, the quiet suffering of more than 500,000 on public waiting lists has endured.