Tuesday 6 December 2016

Baby born without most of his skull celebrates landmark first birthday

Sarah-Jane Murphy

Published 28/09/2015 | 15:49

Little Jaxon who doctors thought wouldn't survive outside the womb
Credit: The Buell family/Facebook
Little Jaxon who doctors thought wouldn't survive outside the womb Credit: The Buell family/Facebook

An infant born with a rare defect, meaning that the majority of his skull and brain are not present, has just celebrated a huge milestone - his first birthday.

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Doctors had warned that the foetus would not survive while in his mother's womb.

About one in 4,860 babies are born with this condition, referred to by the medical community as Microhydranencephaly, which describes the condition that occurs when part of the brain and the skull do not form correctly.

Most babies diagnosed with the illness die either in the womb or very shortly after birth.

Mr and Mrs Buell, both devout Christians living in Florida, refused to abort baby Jaxon, saying that the decision was not theirs to make.

"Who are we to decide?

"We were given a child, we are given a chance and we have to be his voice," Mr Buell told the Mail Online.

The cute baby has become an internet sensation, receiving more than 100,000 likes on his personal web page.

His father recalled the moment he and his wife realised that something was wrong with their baby.

“After our second ultrasound at 17 weeks, when we found out he was a boy, we knew something was up when the ultrasound technician went towards his head and went very quiet.

“Brittany got the call the next day from the doctors saying there was a concern with the MRI results.

"She was in tears and told me there was an issue with the baby.

"Of course, I lost it at work so they sent me home and the rest of the day was a blur truly," he said.

Mrs Buell added: ”I was devastated. It was heart breaking because something I always wanted my whole life was happening, but then I was told there was a possibility it might be a stillborn.”

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