Family of Sir David Frost set up heart test fund in memory of his son Miles
Published 31/01/2016 | 14:46
The family of broadcaster Sir David Frost have launched a fund in memory of his eldest son Miles, who died while jogging last July.
The Miles Frost Fund aims to raise £1.5 million to test for a genetic heart condition called hypertrophic cardiomyopathy (HCM).
Miles, who worked as a financial investor, collapsed while running in Oxfordshire and the family have revealed his death was caused by the condition.
Around one in 500 people are born with the faulty gene which causes HCM and each child of someone with HCM has a 50% chance of inheriting it, the British Heart Foundation said.
HCM causes the muscle wall of the heart to become stiff leading to heart failure.
Wilfred Frost, younger brother of Miles, said his death was "incredibly hard to take".
He said: "Miles' death will always be incomprehensible to us but the circumstances surrounding it have made losing him even more difficult to bear.
"However, we are determined to look forward, and plan to use his passing to create a positive legacy by improving diagnosis for HCM.
"If the Miles Frost Fund helps to prevent just one similar death occurring, then Miles will not have died in vain."
Miles' father Sir David died in 2013 aged 74 after suffering a heart attack on the Queen Elizabeth cruise ship, and a post mortem revealed he also had HCM.
The British Heart Foundation said the majority of people with HCM are undiagnosed and will have no symptoms.
The fund, which has been launched in partnership with the British Heart Foundation, aims to ensure genetic testing for immediate family members of those affected by HCM is available nationwide.
Miles's mother, Lady Carina Frost, said: "I will never forget the joy of handing Miles over to David. David was just totally besotted with Miles the moment he was born.
"He quite simply was born an old soul. And everybody was drawn to his wisdom, love, loyalty and laughter. After David died I just couldn't have survived without Miles."
George Frost, youngest brother of Miles, added: "The hole left by Miles' death can never be filled. But if we can help prevent other families experiencing something similar it will be a great relief."
Simon Gillespie, chief executive at the British Heart Foundation, said: "I cannot praise highly enough the courage and vision of the Frost family in setting up this fund.
"The money raised by the Miles Frost Fund will help to establish a fully functional, UK-wide cascade testing service for parents, siblings and children who could be at risk.
"Working with the Frost family, our aim is to ensure people who have HCM are identified and treated to prevent a needless loss of life."