Wednesday 23 August 2017

Leinster Club News: Run for EB - and fly with the lads on a private jet

James Tracy, Garry Ringrose, kneeling, Josh van der Flier, Dominic Ryan, Rhys Ruddock, Jordi Murphy, Billy Dardis, kneeling, and Ed Byrne with Debra fundraiser Lyndsey Campbell. Photo: Stephen McCarthy/ Sportsfile
James Tracy, Garry Ringrose, kneeling, Josh van der Flier, Dominic Ryan, Rhys Ruddock, Jordi Murphy, Billy Dardis, kneeling, and Ed Byrne with Debra fundraiser Lyndsey Campbell. Photo: Stephen McCarthy/ Sportsfile

Independent.ie Sportsdesk

Leinster supporters who take part in the VHI Women's Mini Marathon are being offered the chance to travel with the team to a Guinness PRO12 match on a private jet - and help children with the incredibly painful butterfly skin disease EB (epidermolysis bullosa).

One of Leinster's charity partners, Debra Ireland, which supports people with EB, is calling for volunteers to sign up for the Mini Marathon in Dublin on June 5 and to run on behalf of Debra Ireland.

Those volunteers could win a trip to Leinster's first away game of next season, including four star accommodation and a private jet trip with the team, courtesy of Joe Walsh Tours.

EB is a genetic condition that causes the skin, both inside and out, to blister and wound at the slightest touch. There is no known cure.

"Last year we lost three of our little superheroes, eight-year-old Liam and babies Éanna and Lola to EB," said Debra Ireland's Judith Gilsenan.

"We want to honour their memories by ensuring that every child with EB gets as much care and support as possible."

Irish Independent

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