independent

Sunday 31 August 2014

A mighty cause at the Mighty Session

Published 23/04/2014 | 05:36

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THERE will be music, fish and frolcs in Dingle's Mighty Session this Friday night when the pub's doorman Darren Ryan hosts a fundraiser in aid of the Cystic Fibrosis Association of Ireland.

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It is a cause very close to Darren's heart as his little daughter Chloe, who is only 17 months old, has been diagnosed with Cystic Fibrosis.

Darren and his wife Angela have been regulars on the road to the dedicated CF Butterfly Unit in Limerick Regional Hospital where Chloe has received excellent care.

However, facilities for Cystic Fibrosis sufferers in Ireland are desperately under-funded and, in an effort support the provision of better care, Darren is readying himself to scale Kilimanjaro on an eight-day trek in Tanzania this October on behalf of the Cystic Fibrosis Association of Ireland.

The climb will also give Darren a greater appreciation of what being a Cystic Fibrosis sufferer means to Chloe. "The air is very thin on Kilimanjaro due to the high altitude so it's important for me to do this so I can understand to some small degree what Chloe goes through," said Darren, who is training hard on the mountains around West Kerry.

"There is a lot of negativity surrounding a CF diagnosis but things are changing and we want to encourage more positivity. Chloe is a carrier of gene mutation G551D, only a small percentage of the population are carriers, and therefore she will be able to receive the drug Kalydeco in six years' time which will make a big difference."

"The drug has only been recently approved and this is down to research so I am eager to contribute to the Cystic Fibrosis Association of Ireland and the great work they do on behalf of those living with CF such as my daughter."

A great night is planned this Friday at The Mighty Session on Dingle's Main Street and Darren is hopeful a large crowd will turn out on the night. Paella, courtesy of The Skipper Restaurant in Ventry (and which was a huge hit in Flaherty's during the Dingle Food Festival) will be served at 7.30pm followed by live music by traditional musician Méabh Ní Bheaglaoích at 8.30pm. Finally DJ Eddie Hutch and his groovy tunes will get everyone 'throwing shapes' at 10.30pm.

Darren is also very grateful to the staff and management at The Mighty Session for their support in helping to organize the event and for the time many of his co-workers have given in fundraising.

"Angela and I have really seen the goodness in people since Chloe's diagnosis and we are putting our best foot forward and facing the future with positivity," he said.

Kerryman

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