independent

Monday 21 August 2017

Fundraiser for little May-Rose

Little May-Rose Gibney
Little May-Rose Gibney

Olivia Ryan

The family of a seven week old baby born with the rare brain condition encephalocele are holding a major fundraiser in Dundalk this weekend to help her access life-saving care in Boston.

Tiny May-Rose Gibney developed the condition, which is a form of spina bifida, in the womb, and has defied all odds to survive until almost eight weeks old.

The condition means that her brain has grown on the outside of her skull, and her family's hopes for the future now lie with pioneering treatment which is only available in Boston.

May-Rose's mum Analee is from County Armagh, but she has a large extended family from Dundalk, who are fighting to raise funds for the potentially life saving treatment in the United States.

Cousin Jackie Flynn added that they were delighted to see the little tot opening her eyes and feeding from a bottle for the first time.

'She is a real wee fighter, to have come this far already, and we are really hoping she can get to see a specialist in Boston, said Jackie.'

The cost for a consultation alone is high, so May Rose's family and loved ones have set up a 'Go Fund me' page in a bid to get her to see a consultant in the US. Alongside that, they are hosting a fundraising event this Friday evening in the Lisdoo.

The night kicks off at 8pm, and is set to feature a whole range of activities from a 'shave, wax or dye' event to lively entertainment from a DJ and disco.

All are welcome to go along and enjoy the night, where around forty fantastic spot prizes donated locally are also up for grabs. Proceeds from the tickets, which are currently available at News&Deli, Park Street and from the Lisdoo directly will go directly towards the 'Get May-Rose to Boston' campaign. Tickets also available by contacting 089 4075998 or 0868708182.

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