Sunday 25 September 2016

Rare disease day raises awareness

Published 23/02/2016 | 02:30

Rare disease
Rare disease

Next Monday, February 29, marks International Rare Disease Day, which aims to raise awareness of rare diseases and the impact that they have on people's lives.

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It is estimated that there are over 6,000 rare diseases in existence in Ireland, impacting an estimated 300,000-plus children and adults.

Approximately 80pc of patients are affected by just 350 rare diseases.

A major conference offering an opportunity for patients and family members to hear first-hand about the latest developments taking place in the field of rare disorders in Ireland will be held in Dublin Castle.

For specific information on rare diseases, emerging treatments and expert services, visit orpha.net/national/IE-EN or for information on International Rare Disease Day, visit rarediseaseday.org or grdo.ie.

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