Devastated mother of Cian McDonnell posts moving tribute to her son: 'Thank you for everything. I love you so much forever'
Hundreds of mourners gathered outside the home of Cian McDonnell last night to pay tribute to him and sing one of his favourite songs "Twinke Twinkle Little Star".
Little Cian McDonnell (4) died on Monday night, after battling a rare condition called Dyskeratosis Congenita. A massive online fundraising drive had been underway to raise money to send Cian to Boston Children’s Hospital for a lung transplant.
Today, Cian's heartbroken mother Lisa (33) wrote a moving message to thank the public for their support.
"Last night hundreds of people gathered outside our house with candles and sent lanterns into the sky. They even sang one of Cians favourite songs "Twinkle Twinkle Little Star". It was so beautiful," she wrote on the Facebook page Hope for Cian.
She said Cian's father Donal and his older sister Chloe are devastated by death of the four-year-old, who filled their home wtih "chat and fun".
"Donal, Chloe and I are completely devastated by the loss of our beautiful little Cian. I am just so honoured to be called Cian's Mammy. He taught me so much and definitely made me a stronger and better person."
"He made a lot of people better people. In a lifetime no one would endure what he did in four short years yet he always had a beautiful smile on his face. I love my boy so much. I can't imagine what is ahead and life without him," she said.
More than €483, 000 had been raised for Cian, from Carlanstown, near Kells, Co Meath so that he could have the life-saving operation he required.The money was raised through a series in Ireland, the US and Australia, as well as a GoFundMe page set up for Cian McDonnell.
When he was almost two years old, Cian underwent a bone marrow transplant after doctors realised his blood marrow was failing.
Earlier this year, Cian was diagnosed with pinholes in his lungs. He was getting just 52pc of the oxygen he was breathing, and the percentage was continuing to fall.
Doctors at Our Lady's Hospital for Sick Children in Crumlin immediately referred Cian to Great Ormond Street Hospital in the UK which specialises in lung transplants.
However, he was deemed unsuitable for their donor lists and an online fundraising drive was launched to raise funds to send Cian to Boston Children’s Hospital for a lung transplant.
Today, Lisa wrote: "No parent should ever have to endure the heartache of losing a child. I can't describe this awful pain. I've never felt pain like it before. I'm going to try to be strong for Chloe and Donal and I know Cian will help us too."
"Our house was always full of chat and fun because of Cian. Peppa Pig was always on. He bossed me around the place and I loved it. He always told me he loved me. I'll miss his lovely big hugs and kisses. I'll miss our busy life."
In the tender message, Lisa called Cian "a beautiful angel" and she promised to keep his memory alive.
"Anybody who met Cian or heard his story were touched by him and loved him and his beautiful personality. I am so proud of Cian."
"Cian was always such a special little boy, now he's a beautiful angel."
"I hope you are happy little man wherever you are and I promise to keep your memory alive. I know I'll see you again. Thank you for everything. I love you so much forever. From your Mammy"