Tuesday 27 September 2016

Little girl’s lemonade stand raises €18,000 for her disabled brother

Published 15/04/2015 | 11:48

Too short to see over the counter, five-year-old Na'ama Uzan improvises with a stool to serve customers at her lemonade stand.
Too short to see over the counter, five-year-old Na'ama Uzan improvises with a stool to serve customers at her lemonade stand.
Na'ama already raised $25,000 with her lemonade stand, to raise money to cure Angelman Sydrome, a neurological condition her brother Nadav has.
Na'ama pictured with her brother who has Angelman Syndrome
Colin Farrell pictured with his son James who has Angelman Syndrome

A Canadian girl has raised a whopping $25,000 (€18,000) for her disabled brother after setting up a lemonade stand in her home city of Toronto.

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Na’ama Uzan’s brother Nadav (7) was diagnosed with Angelman Syndrome, a neurodevelopmental disorder, when he was two. His disorder means that he is developmentally delayed, has speech impairment and frequent seizures.

Five-year-old Na’ama set up a lemonade stand last Spring to raise money for the Foundation for Angelman Syndrome Therapeutics and has now donated thousands of dollars to the charity.

The stand, which is set up in her parents’ driveway in North Toronto changes its menu seasonally and serves warm beverages and muffins during the cold Canadian summers.

Read more: Colin Farrell 'inspired' by son's progress

Na’ama uses a chair to peer over the counter and the neighbourhood’s other children often pitch in to raise a helping hand.

Na'ama pictured with her brother who has Angelman Syndrome
Na'ama pictured with her brother who has Angelman Syndrome
Too short to see over the counter, five-year-old Na'ama Uzan improvises with a stool to serve customers at her lemonade stand.
Na'ama already raised $25,000 with her lemonade stand, to raise money to cure Angelman Sydrome, a neurological condition her brother Nadav has.
Colin Farrell pictured with his son James who has Angelman Syndrome

“It's quite amazing. Even at their young ages, they realise that they can do something to help [him]. It's quite incredible how they've all really stepped up,” said Na’ama’s dad speaking to The Telegraph.

The family have set up three other lemonade stands in the locality to raise vital funds for the foundation.

Spotting Na’ama’s efforts David Lowe and his partner Steve, whose son had been recently been diagnosed with Angelman Syndrome, raised a further $22,000 which has been used to set up a research grant in Na’ama’s name.

Read more: Colin Farrell: How my son's illness made me a better man

Unlike other complex disorders, Angelman Syndrome affects just a single gene and there is hope for a cure.

Irish actor Colin Farrell is a spokesperson for the charity as his son James is living with Angelman Syndrome.

In the past, he has spoken out about how James has enriched his life.

"We share in the smallest victories: the first words at age six or seven, being able to feed oneself at 19, and getting the seizures under control. When James took his first steps at age four, I nearly broke in half!"

Na'ama already raised $25,000 with her lemonade stand, to raise money to cure Angelman Sydrome, a neurological condition her brother Nadav has.
Na'ama already raised $25,000 with her lemonade stand, to raise money to cure Angelman Sydrome, a neurological condition her brother Nadav has.
Too short to see over the counter, five-year-old Na'ama Uzan improvises with a stool to serve customers at her lemonade stand.
Na'ama pictured with her brother who has Angelman Syndrome
Colin Farrell pictured with his son James who has Angelman Syndrome

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