The parents of 17-year-old Kaelem Hainsworth have launched an online fundraising appeal for families affected SADS after the teenager died in mysterious circumstances in 2012.
The appeal, which is in its infancy, has currently raised €120 for Mater Heart House, which raises funds for a Family Heart Screening Clinic for families who have lost members to Sudden Adult Death Syndrome, a sudden cardiac death of an apparently fit and healthy young person.
"We miss him every hour of every day his smile his voice his charm. We just miss everything he was," the online appeal stated.
"My Son. My Love. My Friend."
The tribute fund is a way of honouring deceased loved ones and "what they were passionate about" according to the Mater Foundation.
"A beloved son or daughter, husband or wife, parent or friend; remember their life in a way that celebrates all that was special to them, while helping others to live and be healthy," a description of the fund states.
The teenagers died of a a massive heart attack the morning after attending a pre-debs party, according to coroner Dr Brian Farrell . He added that it is unclear why this have happened.
Kaelem collapsed at his friend's house on November 18, 2012.
Dr Farrell told the court that Kaelem did not drink an excessive amount of alcohol and there was no evidence of any drug use.
Donations to the appeal can be made here.