'Our beautiful boy is with the angels now' - Irish boy with rare illness at centre of 'Hope for Cian' campaign sadly passes away
Published 05/10/2015 | 19:58
The little boy at the centre of a major fundraising campaign which aimed to raise money for a double lung transplant for the four-year-old has sadly passed away.
Over €100,000 had been raised for Cian McDonnell, from Carlanstown, near Kells, Co Meath so that he could have the life-saving operation he required.
However, the campaign group's Facebook page posted yesterday that the little boy had "taken a turn for the worse" and was being admitted to an intensive care unit.
Today, Cian's supporters were informed that "our beautiful boy is with the angels now".
"He fought so hard. Heaven is so lucky to have him. We are broken hearted. His Mammy, Daddy and big sister Chloe held his hand until the end.
"Fly high our beautiful boy where there will be no more suffering or pain."
Cian was diagnosed with a rare condition called Dyskeratosis Congenita shortly before his birth. He went blind before his first birthday.
The little boy underwent a bone marrow transplant almost two years later after doctors realised his blood marrow was failing.
Earlier this year, the sick little boy - who was having trouble breathing - was diagnosed with pinholes in his lungs.
He was getting just 52pc of the oxygen he was breathing, and the percentage was continuing to fall.
Doctors at Our Lady's Hospital for Sick Children in Crumlin immediately referred Cian to Great Ormond Street Hospital in the UK which specialises in lung transplants.
However, he was deemed unsuitable for their donor lists and an online fundraising drive was launched to raise funds to send Cian to Boston Children’s Hospital for a lung transplant.
Last night, the group said that "big sister Chloe is lying beside him giving him loads of hugs" while Cian's "oxygen saturation levels are dropping significantly".
"Cian is loved so much. We're not giving up on him," read the post.
One Direction superstar Niall Horan had given his backing to the campaign donating his personal guitar to raise funds for the little boy.