'1 in a 1000' - Cystic Fibrosis sufferer Triona Priestley (15) remembered in poignant event year after Ed Sheeran sang to her following #SongForTri online campaign
Teen's dying wish was realised through online campaign #SongForTri when Ed Sheeran sang to her
Published 02/04/2015 | 15:06
The family of a teen girl who passed away last year after a battle with cystic fibrosis have praised her friends for marking the 1st anniversary of her death "so beautifully".
Triona Priestley's mum Bernie told independent.ie that her friends gathered at the Papal Cross in Dublin's Phoenix Park on Monday.
"They released 47 balloons of different colours into the air - one for every thousand retweet that they received when they launched the #songfortri campaign," she said.
Twelve months ago, a group of Triona's close friends made headlines when they began an online campaign to get pop singer Ed Sheeran to sing for the 15-year-old before she died.
This week's touching event was made even more special as the group tied the balloon release in with the '1 in a 1000' Cystic Fibrosis Ireland campaign.
Bernie said that at one point a purple balloon, the colour that represents support for CF sufferers, got tangled in a tree.
"I know these coincidences happen but the balloon stayed there until all the others were fully released - and then it went up into the air," she told independent.ie.
The group of approximately 100 people was led by Triona's friend Lucy Hanlon, who was also instrumental in the #SongForTri campaign.
Her dad Tony captured video footage and images attached. The group later returned to Lucy's house for "lasagne, cookies, cupcakes, brownies - and teabags."
"There was laughing and crying and music. They are absolutely amazing kids," said Bernie.
Triona was the youngest of five and is survived by her four older brothers, Ciaran (32), Colm (29), Eoin (26) and 23-year-old Aidan.
Having found a number of video clips their sister, who was a prolific blogger about her illness, had recorded on various phones and laptops, they decided to create a compilation that reflected her personality.
"We knew Triona was making them so Colm made a five minute compilation of all the recordings from laptops, iPads and phones," Ciaran told independent.ie.
"It was mainly for Triona's friends who were such a big part of the #SongForTri campaign."
Meanwhile, Triona's parents and her brothers remembered her quietly yesterday with a dinner around the family table.
"While we appreciate the publicity that Triona's story has received, we wanted to mark the anniversary ourselves privately," said Ciaran.