Wednesday 23 August 2017

HSE won't fund boy's specialist treatment

Fergal and Fran Kane with their son, JJ
Fergal and Fran Kane with their son, JJ
Colm Kelpie

Colm Kelpie

THE parents of a boy with Down Syndrome and a raft of medical problems claim he may miss out on specialist care because health chiefs will not fund the treatment.

Nine-year-old JJ Kane from Tallaght, Dublin, who is wheelchair-bound and suffers from juvenile arthritis and the joint condition hypermobility, was referred to Great Ormond Street Hospital in London by a consultant at Our Lady's Children's Hospital in Crumlin.

His parents Fran and Fergal said they could not afford the treatment, which they estimate at €10,000, and applied to the HSE for funding. But the HSE refused to pay, saying he could be treated in Ireland.

Mr Kane denied JJ could receive the care here. "The goal is to get him out of the wheelchair," he added.

Mr Kane said his son could receive care from a range of specialists at Great Ormond Street, including physiotherapists and occupational therapists.

The HSE said each application under the Treatment Abroad Scheme was reviewed by medical experts. "When the treatment is available in Ireland, overseas travel for treatment is unnecessary," the HSE said.

The family has appealed the decision.

Irish Independent

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