'He'll never have a normal life' - Dad hits out at hospital waiting lists as son's (2) condition deteriorates
The father of a young boy who is battling scoliosis says that his two-year-old son will never have "any quality of life" after waiting lists caused his condition to deteriorate.
Adam Doyle from Co Louth said that his worst fears were confirmed after his son, Noah (2), was finally seen by a consultant on June 28.
Two years after he was diagnosed with scoliosis, Noah’s back has become fused together. This will severely restrict Noah’s quality of life.
“We knew from the start that Noah will never live a normal life, he’ll never go to a normal school, never fall in love, have kids or a family of his own,” dad Adam told the Pat Kenny show.
He added that he and his wife Rosemarie had “made peace” with the life Noah will have, but this new information has threatened to shatter any dreams the couple may have for their son.
“You then dream about things. Noah loves being outside so you think ‘right, we’ll go for a walk in the forest. We’ll go for a walk on the beach. We’ll build a life that he’ll be happy, because that’s what’s important'. Now suddenly that’s gone."
Adam believes that with proper intervention Noah’s condition wouldn’t have gotten so bad. Now, Noah faces painful surgeries that could cost millions of euro.
The two-year-old also faces more extreme surgery if he hopes to regain any movement in his back.
“They are going to go in with a grinder and saw and cut away sections of his spine.”
Noah is waiting to be put on a waiting list for treatment at Our Lady's Children's Hospital, Crumlin.
Our Lady's Children's Hospital is the “only show in town for Noah” as his heart complications require special treatment especially when it comes to being sedated.
Adam has pleaded for the people of Ireland to speak out, stating that it is a “time sensitive situation”.
“It’s our health service. When this is done to children, it’s done in our name, as Irish people. We can’t let it happen anymore.”
Adam also said he was conscious that people talk about Noah as problem, but his son is so much for than that.
“He’s the most beautiful little boy you’ll ever see. All he wants to do is smile.
“He’s not a normal child but he’s a happy child.”
In a statement, Our Lady’s Children’s Hospital, Crumlin said that they are developing a treatment plan for Noah.
"Noah Doyle was on the OLCHC Orthopaedic Outpatient Waiting List for scoliosis review and was seen recently by an Orthopaedic Consultant Surgeon.
"Following this recent review the Consultant Orthopaedic Surgeon is developing a scoliosis plan of care for Noah’s treatment at OLCHC. To facilitate this Noah will require full clinical assessment at OLCHC.
"As part of this assessment Noah Doyle’s case will be one of the patient cases that will be discussed at a planned multidisciplinary team meeting which will include orthopaedic surgeons from OLCHC and experts from a National UK Orthopaedic Centre as part of the overall HSE Scoliosis Action Plan 2017. This multidisciplinary meeting will take place at OLCHC next week.
" OLCHC awaits the outcome of this multidisciplinary team meeting to progress Noah’s treatment plan and will revert to the family directly.”