Wednesday 7 December 2016

Parents: 'We're having to fight for things that should be given'

Published 23/11/2016 | 02:30

Connor Fitzpatrick was born with Lipomylemeningocele
Connor Fitzpatrick was born with Lipomylemeningocele

Here are just two of the young patients desperately in need of urology services at Temple Street Children's Hospital.

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Their heartbroken parents say their children are suffering because they are not getting enough support.

Hollie O'Keane was born with Spina Bifida and Hydrocephalus
Hollie O'Keane was born with Spina Bifida and Hydrocephalus

Six-year-old Hollie O'Keane has spina bifida and hydrocephalus. Her condition means she has a lack of bladder and bowel control and is under the care of a multidisciplinary team.

"After a lengthy period of approximately eight years, a urologist consultant has been included on the team in Temple Street," said her mother Diane O'Keane.

"Hollie requires specialist treatment to prevent irreversible kidney damage.

"Up until now, most of her care has come from the fantastic spina bifida nurses in Temple Street and we are grateful for this. But she needs to see the specialist urologist, Mr Salvatore Cascio, regularly to give her the best chance and keep her kidneys healthy.

"Mr Cascio is lacking resources to enable him to treat our children effectively and we fear we may lose him if things do not change."

Two-year-old Connor Fitzpatrick was born with lipomyelomeningocele, a rare defect that means fatty cells attach to the spinal cord.

He also has reflux on his left kidney. His parents are hoping they can secure an appointment to see the urologist by the end of the year to discuss his options.

"However, we do feel there is a lot of wait and see approaches in relation to our son, which just isn't good enough. The damage being done to his kidney is irreversible," Vicky and Gareth Fitzpatrick said.

"Once again we are having to fight for things that should be a given."

Irish Independent

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