GAA gives children with rare disorder a big boost
CHILDREN with a rare neurological and developmental disorder are set to get a helping hand, thanks to the GAA.
Rett Syndrome Ireland, which was set up by the families of children with the devastating disorder, is set to receive significant funding from the GAA this year.
The syndrome is a rare genetic disorder which occurs in one in every 10,000 female births. There are in the region of 70 girls with the condition in Ireland and most have significant and multiple disabilities; many can't walk, very few can speak and the majority suffer poor hand control.
The children and their families were delighted when the All-Ireland hurling and football champions, Kilkenny and Dublin, dropped in to visit them and brought both the Sam Maguire and the Liam McCarthy cups along.
Fundraising for Rett Syndrome Ireland usually falls to the families. However, this year the group will be able to bring in specialists and physiotherapists from the UK to set up a clinic here to assess children with the syndrome, thanks to funding from the GAA.