Mum Audrey Murnane has just five days to raise funds for her twin girls with a life-threatening condition.
“It's very upsetting to trust the medical system and then it lets you down at the final hour when you've nothing but desperation, what am I going to do?” Audrey who lives in Cork told the Herald.
The mum who has spent 198 nights in various hospitals with her girls found out only two days ago that no funding was available for the twins' life-saving procedures.
Maya and Zoe Murnane are the only twins in Ireland born with a rare condition that severely affects their breathing.
They were operated on in August 2012 and need critical medical attention but they've been let down by the Irish healthcare system with no funding available to them.
When mum Audrey took her newborn twins home for the first time baby Maya turned blue as her trachea only measured 1.1mm in width.
Both babies, now 18 months old, have received a theatre slot in Great Ormond Street Hospital for December 18 to have the procedures and Audrey is desperate to make it happen as the waiting list is two years long.
She can't afford the €34,000 bill and took to Facebook to raise funds. In just two days over €20,000 was raised by people all over the world.
In Ireland there's only a 50pc chance of survival but in London's Great Ormond Street there's a 95pc success rate.
“If you'd asked me 24 hours ago I would have thought it was impossible,” said Audrey about getting the money.
The desperate mum was in a hotel in Limerick two nights ago when in walked Donncha O'Callaghan and the Munster rugby team.
“I was crying in his face,” said Audrey who had worked with Donncha's wife in the past. The rugby international has now come on board as the twins' ambassador and the entire team will do a private photoshoot for the girls in the University of Limerick today. They're also holding an online auction with signed Munster goods.
A staff member from Aer Lingus donated her annual travel vouchers to allow the family to fly to London.
To donate to Audrey, lodgements can be made to Ulster Bank Account Number: 19508190 and sort code: 98-57-55.