'I want the best future for him, no matter what he’s suffering' - Dad busks around 32 counties to raise money for his disabled son
This dad came up with the best way to raise funds for his son who suffers from quadriplegic cerebral palsy, CVI blindness and refractory epilepsy.
When Ben Folkman became worried about how he’d raise the money to aid his five-year-old son Jarrah, he decided to set off across the country to complete 32 gigs in 32 counties.
The devoted dad set off on June 19 along with five other musicians to travel across the country over seven days and raise money for his son, naming the project Jammin’ for Jarrah.
Ben, who is originally from Australia but lives in Cavan, said he wanted to do whatever he could to help his son and his condition, which means he has no control of his muscles from the neck down and affects his brain function.
“I love him to bits and I want the best future for him, no matter what he’s suffering,” he told the Irish Mirror.
“Because of his conditions he needs access to hydrotherapy and get other equipment to make his movements easier.”
“He mostly needs a wheelchair-accessible car so he can be brought to daycare or to the doctor without too much hardship on him.”
The fundraiser finished on Saturday night with an auction in Errigal Country House Hotel, Cavan, where prizes included a signed Manchester United programme from Roy Keane.
Speaking of his fundraising journey, Ben said: “Everybody was so kind and it means the world to Jarrah, his mam Elysha, his three-year-old sister Aria and me.”
You can donate money to Jammin’ for Jarrah here.