Macra to raise funds for 'Hugh's House' charity
FOR the family of a chronically ill child in need of long-term treatment, the journey from a rural homeplace, such as Connemara, Co Galway, to Temple Street Children’s Hospital in Dublin’s conjested city centre, is a daunting task.
On top of the stress and exhaustion of caring for their little one, learning how to navigate rush hour traffic and locating an affordable and appropriate parking spot to make their appointment on time, parents are often left in the dark when it comes to options for overnight accomodation.
In some cases, parents are left with no alternative but to move to Dublin while their sick child undergoes treatment at Temple Street or the Rotunda Hospital.
Two years ago, Ade Stack and Marty Curley wanted to create a ‘home from home’ for these parents, in memory of their beloved son, Hugh.
Born on Dec 13, 2012, the Curley’s, from Malahide, Co Dublin, spent 247 days nursing baby Hugh at the Rotunda until tragically, he lost his battle against a mystery illness at just eight months.
As the devastated parents faced their grief, Ade and Marty were reminded by a sense of gratitude that they lived close by and were able to “love Hugh in person every day of his life”.
“In hospital, we saw many families who for financial reasons, are not on the same journey. We believe that everyone wants to do the best for their children but some need support,” said Ade.
“Many parents are exhausted - they are sleeping on the floor or in a chair often for months at a time. I am a very proud Dubliner and I saw people who began to hate Dublin - the loneliness, the lack of help. They felt forgotten.